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Parrothead Walks For Lupus

 

Parrothead Walks For Lupus

5th Annual DC Lupus Walk – The Rain Could Not Stop Us!!

(Today’s guest post is from Janice Wolfe-Easley, a friend of the Parrot Island Band. We first met Janice when she visited her sister, Sharon, here in Georgia. We discovered we share a love of Jimmy Buffett, Trop Rock music and the beach. As a fellow Parrothead, we also share a belief that it is important to enjoy the life we have AND to use our lives to help others. Janice recently participated in Walk for Lupus Now®, a fundraising event for the Lupus Foundation of America. Janice shares with us her experience in the Walk for Lupus Now®. Thanks Janice, for your friendship and inspiration… you give Parrotheads a good name… Bry ;-))

Janice visits the Parrot Island Band

(Left to right: Linda, Janice, Bry, Sharon, Dan)

(From Janice Wolfe-Easley)

April 16, 2011 – When the rain started falling Saturday morning, we were prepared with our ponchos and umbrellas! Enthusiastic volunteers and Lupus Foundation of America (LFA) staff greeted us at the registration tents with friendly smiles and colorful butterflies to carry along the route. Knapsacks were provided by the leading sponsor of the walk, Human Genome Sciences (HGS). HGS is not JUST a sponsor, HGS is the pharmaceutical company that VERY recently (March 2011) developed the FIRST drug approved specifically for the treatment of lupus in the past 52 years!  WOW!!

JAnice Easley walk for Lupus

Despite the rain, cold and wind that tried to claim the day of lupus awareness in the District of Columbia, over 2000 walkers strutted down Pennsylvania Avenue. The poor weather had the “potential” to put a damper on the event, but the spirits of lupus supporters were vibrant and strong, and they refused to allow anything to get in the way of giving this chronic disease the awareness it deserves! 2000 walkers came together to help raise lupus awareness and funding to support those affected by lupus. 2000 walkers, the biggest crowd yet for this walk, surpassed the fundraising goal and to date has raised over $300,000.
 

Teams large and small proudly displayed signs, T-shirts and banners of their family and friends that “live with lupus.”  My own lupus support group team did a phenomenal job of raising money – earning t-shirts, a tent, and even cupcakes for the day of the event – way to go, team! To my surprise, my family designed T-shirts for us to wear “in honor of me.” Did the rain dampen spirits? I don’t think so, in fact, it may have drawn us closer as we “huddled together for pictures, huddled together under tents to eat soggy cupcakes, shared rain gear and huddled together under umbrellas to cross the finish line”.  As we walked back to the car after the walk, we planned where to go for breakfast. Another opportunity to gather together, enjoy a warm meal and talk about our wet but uplifting morning. I wondered why my brother-in-law was very quiet at the walk. I thought, maybe he’s cold and uncomfortable. I could certainly understand that! Here’s what he wrote to me after the walk –
 

"Today we walked in support of the Lupus Foundation in D.C. Despite inclement weather the smiling faces of those that deal with the Hell of this disease daily and yet bear these conditions to support their own cause was truly inspiring. I looked at life a little differently today. Heroes come in all different walks of life. I saw a lot today. One of them being my Sis-in-law, Janice. We are so proud of you! Stay Strong!"  Rick Pownall

What is Lupus?  Lupus is a chronic, autoimmune disease that can damage any part of the body (skin, joints, and/or organs inside the body). Chronic means that the signs and symptoms tend to last longer than six weeks and often for many years. In lupus, something goes wrong with your immune system, which is the part of the body that fights off viruses, bacteria, and germs ("foreign invaders," like the flu). Normally our immune system produces proteins called antibodies that protect the body from these invaders. Autoimmune means your immune system cannot tell the difference between these foreign invaders and your body’s healthy tissues ("auto" means "self") and creates autoantibodies that attack and destroy healthy tissue. These autoantibodies cause inflammation, pain, and damage in various parts of the body. An estimated 1.5 million Americans have lupus and at least 5 million people worldwide. To learn more about lupus, visit http://www.lupus.org/.

The Lupus Foundation of America, Inc. (LFA) is the foremost national nonprofit voluntary health organization dedicated to finding the causes of and cure for lupus and providing support, services and hope to all people affected by lupus. Donations continue to be accepted!!

Follow This Link to visit my personal web page and help me in my efforts to support Lupus Foundation of America-DC/MD/VA Chapter. All money raised will continue to provide free education workshops and support services to those affected by lupus.

Janice Easley with mom and sister

With the inspiring success of the 2011 DC Lupus Walk, plans are already being made for the 2012 DC Lupus Walk! The Lupus Foundation of America, Inc. (LFA) goal for 2012 is to become the largest lupus walk in the nation by having over 3000 walkers with a goal to raise $400,000 dollars.

May is Lupus Awareness Month! Get your lupus gear at http://www.shoplupus.org/